• Mission
  • Activities
  • Member Meeting NL
  • Member meeting USA
  • Family Day

CMTC OVM Mission

"Our activities are aimed at the well-being of people who suffer from vascular malformations like CMTC ('Van Lohuizen syndrome') and to stimulate the scientific research of these afflictions."

2010
Promotion CMTC 2010
2009
Promotion CMTC 2009
2007+2008
Promotion CMTC 2007
2005+2006

Promotion CMTC 2005

CMTC activities

A sampling of the many activities in which we're involved.  With special thanks to Mark Knopfler (Dire Straits) for allowing the use of his music.

Meeting NL 2012

On November 3, 2012, we organized our annual meeting in the Netherlands, including parallel sessions. The number of participants this year was around 70 people from Belgium, Germany, Hungary, the Netherlands, and the USA.

Read more

 

Member Meeting USA 2012

On July 14, 2012, we organized near Washington, DC for the member meeting of our members in the USA and Canada. Many members have used the opportunity for free medical diagnosis by Prof. dr. van Steensel.

Read more

Family Day 2012 (Burgers's Zoo)

On the June 9th we have organized the Dutch CMTC-OVM family Day. This year we selected a large zoo with a lot of variety.

Read more

 

The policy for the period 2013 to 2015 has been published and immediately get in 'pdf' format.

Files:
CMTC-OVM Beleidsplan 2013-2015
Date 2013-03-27 Filesize 0 B Download 248

St. Louis Hotel DT exteriordusk 677x380 FitToBoxSmallDimension Center

Time is drawing near for the annual conference in St. Louis. 

For your convenience, the hotel has provide us with a custom link to make our reservation experience simple. 
Please follow the link provided here to make your reservations.

 

http://doubletree.hilton.com/en/dt/groups/personalized/S/STLUSDT-OVM-20130702/index.jhtml?WT.mc_id=POG

On 2 March 2013, one of our medical advisors Prof. Dr. Maurice van Steensel has received the Angel Award! He has received this Dutch award as a scientist in the context of global rare diseases day in the Netherlands!
We got him nominated for this award because of his enormous personal commitment for many years and are very proud of him that he has received this award!

Please join us for the 2013 Member Meeting/Conference.  This year's conference will be held July 6, 2013 in St. Louis, Missouri. We will be staying at the beautiful St. Louis Union Station – A Double Tree by Hilton Hotel.  The organization has been given a group rate of $89.00/night for a single, double, triple, or quad room. These rates will apply for the dates of: July 3, 2013 – July 9, 2013. Visit the hotel's website at St. Louis Union Station - a DoubleTree by Hilton Hotel and take a look around.  A link will be provided here on our website, where you may make your reservations with the hotel.

Read more: 2013 Annual Conference

Membership fees and donations can now be paid through PayPal and soon using iDeal. For larger contributions, it is possible to directly transfer your donation to our bank account. Please contact the president or treasurer for details.  We hope that our members and supporters find these options easier in helping us financially.

cmtcovm-usa2012mmThe presentations and video recordings of the 2012 meeting in the USA in 2012 have been added to the report of the meeting. The videos and presentations can be found via the menuActivities | USA | America 2012. Activities | Member Meeting | Member meeting USA 2012. The videos and presentations are only visible to members. You need to login before they are visible and can be viewed.

More Articles...

  1. In Memoriam: Makenna
  2. Ambassadors

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Calendar

JUN
22

09:00 - 18:00
CMTC-OVM Family Day NL

JUL
06

09:00 - 17:00
CMTC-OVM US meeting

NOV
01

20:00 - 22:30
CMTC-OVM member meeting NL 2013

NOV
02

10:00 - 20:00
CMTC-OVM member meeting NL 2013

Your support is required

You can support us in many ways so we may help patients and their families. We require (financial) aid to organize our member meetings (with free medical diagnostic options) and family days.

Other CMTC chapters

CMTC as disease is not limited by borders, neither are we.

Donate

2010
Promotion CMTC 2010
2009
Promotion CMTC 2009
2007+2008
Promotion CMTC 2007
2005+2006

Promotion CMTC 2005