"Our activities are aimed at the well-being of people who suffer from vascular malformations like CMTC ('Van Lohuizen syndrome') and to stimulate the scientific research of these afflictions."
A sampling of the many activities in which we're involved. With special thanks to Mark Knopfler (Dire Straits) for allowing the use of his music.
On November 3, 2012, we organized our annual meeting in the Netherlands, including parallel sessions. The number of participants this year was around 70 people from Belgium, Germany, Hungary, the Netherlands, and the USA.
On July 14, 2012, we organized near Washington, DC for the member meeting of our members in the USA and Canada. Many members have used the opportunity for free medical diagnosis by Prof. dr. van Steensel.
On the June 9th we have organized the Dutch CMTC-OVM family Day. This year we selected a large zoo with a lot of variety.Read more
Time is drawing near for the annual conference in St. Louis.
For your convenience, the hotel has provide us with a custom link to make our reservation experience simple.
Please follow the link provided here to make your reservations.
Please join us for the 2013 Member Meeting/Conference. This year's conference will be held July 6, 2013 in St. Louis, Missouri. We will be staying at the beautiful St. Louis Union Station – A Double Tree by Hilton Hotel. The organization has been given a group rate of $89.00/night for a single, double, triple, or quad room. These rates will apply for the dates of: July 3, 2013 – July 9, 2013. Visit the hotel's website at St. Louis Union Station - a DoubleTree by Hilton Hotel and take a look around. A link will be provided here on our website, where you may make your reservations with the hotel.
Membership fees and donations can now be paid through PayPal and soon using iDeal. For larger contributions, it is possible to directly transfer your donation to our bank account. Please contact the president or treasurer for details. We hope that our members and supporters find these options easier in helping us financially.
The presentations and video recordings of the 2012 meeting in the USA in 2012 have been added to the report of the meeting. The videos and presentations can be found via the menuActivities | USA | America 2012. Activities | Member Meeting | Member meeting USA 2012. The videos and presentations are only visible to members. You need to login before they are visible and can be viewed.