"Our activities are aimed at the well-being of people who suffer from vascular malformations like CMTC ('Van Lohuizen syndrome') and to stimulate the scientific research of these afflictions."
A sampling of the many activities in which we're involved. With special thanks to Mark Knopfler (Dire Straits) for allowing the use of his music.
On the 2nd of November 2013 we have organised again our annual member meeting in the Netherlands with eg. a series of parallel sessions. The number of participants was this year 80 from Australia/Switzerland, Belgium, Germany, Iraq, Japan/Dubai, the Netherlands and the USA.
On July 14, 2012, we organized near Washington, DC for the member meeting of our members in the USA and Canada. Many members have used the opportunity for free medical diagnosis by Prof. dr. van Steensel.
On Saturday the 22nd of June it was time for the Dutch CMTC-OVM family day again! This year we did select the Efteling again and our participants had another great day!Read more
The Board of CMTC-OVM is looking for a Secretary to replace Fiona Kerkvliet whom has given up her board role. Soon a general members meeting will be organised on this subject.
Our international members meeting on the 2nd of November 2013 in Netherlands has reached more or less the final form! The number of registrations is pretty good (at this very moment already people from 8 countries) and the agenda offers something for everyone. For the children is not only the well-known 'felting' arranged again but we offer also the opportunity to nail lacquers and hair braids.
We have a new medical advisor Prof. dr. Pasmans who will give an explanation and demonstration of the Skin House. The Skin House is a very extensive website with lots of features which are of great importance for patients and our organization. The website is not yet available in English. Skin House website
CMTC-OVM was present at the annual NORD / DIA conference in Washington from 6 to 9 October 2013. The 'shutdown' of the U.S. Government was about one-third of the speakers failed and the organization had a challenge a week before the start of the conference to catch it.
A full report is available at: conference report.
On Saturday, November 2, 2013 we will be organizing our annual meeting in the Netherlands (near Amersfoort Leusden). Again, participants will be able to choose from different parallel sessions covering a wide range of topics (interactive). For the children there will again be a separate team and space available and something to do for children of all ages. Members can get a free diagnosis by Prof. Oranje and Prof. dr. Dr. van Steensel.
For our foreign members we will meet on Friday, November 1, with a snack and a drink to get to know each other in a casual setting.
Please note that it is only possible to register for this meeting as a doctor and member after you have paid as member the annual dues.
On Saturday, July 6, 2013, we had the annual meeting held in St. Louis, Missouri, USA. Several participants attended a joint introduction at the zoo the day before the conference. Prof. Dr. Maurice van Steensel traveled to the USA to provide free medical diagnoses. Dr. Millan Patel came specially from Canada to share the status of genetic research to CMTC with us.
Soon a report and the videos of presentations will be available for members.